Shoutout from the Whirlwind — A Prayer Request
Hi friends! It's just me, reporting from the twister that swept me away a couple of months ago. Newsflash: That aforementioned twister has not yet been so kind as to set me back down on solid ground, no matter how politely I tap the heels of my ruby slippers! But I must take a moment to shout out from my whirlwind with a prayer request. It appears as though I've found myself in a bit of an emergency once again. Surprise, surprise. Some of you may recall that I have lost two central venous catheters (CVCs) this year, one in February and one in April. It seems that my body is having trouble holding onto central lines. This complication can sometimes come along with Ehlers-Danlos, my connective tissue disorder. Dr. Malik, my surgeon, did beautiful work in placing my current line, stitching it in impeccably so that it could last me as long as possible. However, for a while now we have noticed it slipping out of place, gradually becoming more and more problematic until finally this week it stopped offering blood return. Ruh-roh! This is most certainly a predecessor to even more significant issues that could follow any minute, so I'm just thankful that this line is still infusing my TPN and IV meds. But this is a limit I simply cannot push. Consequently it is necessary that I have a new CVC placed even sooner than pronto! Because of my unique needs it surely isn't easy to hastily arrange a surgery. We have run into some complications because Dr. Malik recently left the hospital, leading to the more-difficult-than-anticipated task of tracking down the best doctor for the job. But one of the brightest silver linings of my recent HLH flare was that I had the pleasure of getting better acquainted with my palliative care doctor who was acting as my hospitalist while I was inpatient. Dr. Chismarich is truly a remarkable doctor in every way. Somehow she managed to pull together all of the bits and pieces necessary for my procedure. And take my word, there are A LOT of bits and pieces. Now that all is set in place, I will be having my surgery today at 2:30. That's not all. My mom has been a candidate for a hip replacement for quite some time. But as my caregiver, she has pushed back this intervention for as long as she could, waiting for a calmer time when my health might reach a better place. Eight years later, that time still has yet to arrive. But ready or not, this week rolled around and my mama's hip decided it has just about had enough. Shazbot. Wait, there's more. With Mama barely able to walk, we clearly needed some help. But my daddy has been out of town on business. Although he returned to St. Louis late yesterday evening, he had some pretty close exposure to the flu while he was away, meaning he has to keep his distance from me until we know he is all clear. And even my big sister is out of town for work this week, which happens once a year at most! But thank goodness Aunt Lesia and Uncle Terry live just down the street; and honestly, I can say with full certainty that there is no way we could make it through this fiasco without them. They so kindly drove us to St. Louis for a consultation with a prospective surgeon, which incidentally was cancelled by his office just as soon as we pulled up at the hospital's valet parking pavilion. Alice Eloise and Uncle Terry have had plenty of bonding time as he has been on, um, "doggy duty" duty. And with Aunt Lesia's help I had a much-needed shower and even some impromptu dental work. It's been quite the adventure! Or misadventure, perhaps? Either way, we still have some major details to figure out for when my mom has her own surgery; but thanks to the Frey family down the street, by golly, I think we just might survive this week yet! And hey, you! I could use your help, too! Could you please pray that my surgery goes smoothly today? For those of you who are new here, I have a history of paralysis following surgery, a mystery that took far too long to solve. I wish I could say that a fair bit of sleuthing was all it took to find a solution, but the price tag was quite literally my left arm. In February I received so little anesthesia for a procedure that I was aware throughout. This was a frightening experience to be sure, but because I was awake I had the opportunity to finally learn that my paralysis begins when the analgesic effect of the anesthesia ends, inviting my intense pain to hit full-force. Unfortunately my left arm has yet to awaken from the subsequent paralysis. But this incident led us to the development of my own special, detailed anesthesia protocol that successfully evaded my paralysis when I had my last procedure. Please, please, please pray that this protocol is once again the magic ticket! Now, I've got a big day ahead of me, so I'd better boogie. Toodles!

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14 Responses to Shoutout from the Whirlwind — A Prayer Request

  1. Betty Bashaw says:

    Sarah Kate, We are praying for you, specifically NO PARALYSIS! We will pray, too, for your mom, dad, Aunt and Uncle (Lisa is my cousin), sister … and for God’s peace to you all!

    Loving you from a distance, The Bashaw Family

  2. sue deist says:

    Thoughts and prayers are with you always. Remember me if you need more help. Am just a few doors away 🙂

  3. Karen says:

    Praying to our Heavenly Father for His healing to come over you and your family and grant you His Blessings of health and happiness. He is a merciful and loving God. Asking this is the name of Jesus, that you and your family will be touched by the Spirit of God. Amen

  4. kay butts says:

    you are always in my prayers, but I will definitely say extra prayers today. Please let me know if there is anything else I can do – errands, meals, etc.

  5. Tom and Jennifer Finley says:

    Hugs and prayers!

  6. Missy McCoy says:

    Wow, praying for you, sweet Sarah…and for your mom, and for your doctors, and for your family,! You truly amaze me and I am so happy you posted real quick…we’ve been thinking so much about you! Xoxoxo Missy Ephesians 3:20 Now to Him Who, by (in consequence of) the [action of His] power that is at work within us, is able to [carry out His purpose and] do superabundantly, far over and above all that we [dare] ask or think [infinitely beyond our highest prayers, desires, thoughts, hopes, or dreams]– To Him be all Glory!!!!!

  7. Sairee Knabe says:

    Sending lots of prayers to you and your family Sarah!! Please let me know if there is anything i can do to make things a little easier on you guys 🙂

  8. Definitely praying for your procedure today, Sarah Kate!

  9. Kim Giles says:

    Sarah…We are sending prayers your way. I am so glad Aunt Lesia and Uncle Terry are there to help you and your family. I am hoping and praying your surgery goes successfully today, and also praying for your mom and her hip. Thanks for the update. Love Always, Kim and family

  10. Yvonne says:

    Prayers coming your way sweet Satah. I’m so sorry to hear all of your news, and now your Mom’s hip!! Oh my! Will surely be praying for the whole family! Love u

  11. Sue Tiek says:

    Prayers as always for you Sarah, your mom and family. Let me know if I can help in any way!

  12. Hi Sarah Kate! I hope everything goes OK before, during, and after yo undergo surgery. I do also hope you recover “sooner than pronto”, as you’ve said. If it can serve as an anchor with which you can firmly hold a task you are particulary excellent at, please think you have to keep writing. So, you should know there are a lot of avid readers who have become “your readers”. There will be a time when you will write about less important topics, such as the silly things most of us write about, but the main difference will be they will be written by you, that is, with the particular wit you describe things. Please do not get me wrong. I do not mean I do not want to read the story of your journey anymore. No. What I mean is that I would also like to read pieces of writing that tell us about how well you are doing, at university for example. So, I hope this thought of mine encourages you to go to the surgery procedure being sure that your friends from all around the world will be praying for you and God will hear. I love you my sweetest and dearest friend!

  13. Jesus, please wrap your arms around Sarah Lord. Please I beg you to never let her go. Amen.

  14. Sue Giles says:

    Dear Sarah Kate,

    I read your blog and prayer request a bit late but our prayers were right on time. We keep you in our hearts and always in our prayers. We are hoping you are at home. We send our love to your Mother and Dad too.
    Aunt Sue, Uncle Wayne