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Birthday Wishes from Mom & Dad
What a gorgeous day to celebrate the beauty of you, Sarah Kate. Happy Birthday sweet girl. You have blessed our lives so very richly with your joyful, quirky personality. What a privileged it has been to share the past 22 years of wonderful memories. I hope that you enjoy the walk down memory lane ... I know I sure did as I pulled these pictures together. Love you forever and always!!
Birthday Wishes from Krista
Happy birthday to my sweet sister, Sarah! I am so blessed to have such a wonderful sister! Every day, your beautiful personality and optimism inspire me, and I thank God for giving me you. I'm praying that 22 brings a year of answers and continued hope for a healthy future. I love you so much!
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Category Archives: Awareness
I’m not so good at saying goodbye. Once you wiggle your way into my heart, I want to hold you there for keeps.
But these past few weeks I’ve been faced with a heartbreaking question: How could I ever say goodbye to the man who saved my life?
Our story begins in June 2011, when my parents and I found ourselves in Baltimore. It had been a tough year for me, with one of the biggest blows being severe and enigmatic hematologic complications that nobody could explain. With this addition to my lengthy list of eccentricities, I had all the earmarks of an underdog. And soon enough I was beginning to think that nobody wanted to deal with an underdog. The major medical center in my area turned me away, saying I didn’t have leukemia or lymphoma, so they couldn’t help me. So there we were, sitting in the pediatric hematology/oncology clinic at Johns-Hopkins, on what felt like our zillionth-and-second medical trip. We were in for quite a surprise… This visit would be entirely unlike the zillion-and-one before.
National Chronic Invisible Illness Awareness Week was observed earlier this month. Over the years my illness has become more obvious to a casual observer, but from the early days of my chronic battle I poignantly remember the challenges posed by the mere fact that my illness was largely invisible. And because of those painful memories, I feel compelled to speak up for myself, for my friends, and for the many silent sufferers of invisible illness.
My very first diagnosis in my journey was Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS), a chronic neurological pain condition. At age 13 I still looked like the same happy, peppy, sassy Sarah Kate in my darling little Abercrombie skirt; but on the inside, I was fighting to deal with this new sensation of an ever-present burning flame that threatened to bring me to tears if only I would give into it.
So. Are you psyched? Because guess what… I am TOTALLY psyched! Yesterday was a party over here at the Frey household. Isn’t it always a party, though? On this day in particular, however, we celebrated three exciting occasions. April 17th is one of my favorite days ever, purely because it is my big sister Krista’s birthday! She is a lovely girl after all, one of the supreme blessings in my life!
In 1991, the 17th of April was almost certain to be doubly special, as yours truly was expected to enter the scene on that very date. But it will come as no surprise to you that even then I had a mind of my own. To build suspense, I opted to be “fashionably late” and refrained from making my grand premiere until April the 25th. Additionally I am a pretty fair sharer now that I have had time to mature a bit, but honestly, it was probably best for all involved that I had my own special day when I was a tiny moppet.
STORIES OF (H)OPE, (L)EGACY, AND (H)EROES Alright, friends. Today I am writing an important post, focusing on a subject that I view with great passion. I have been sick for nearly ten years, facing rare diseases that in many ways … Continue reading
Have you ever thought of “thankfulness” as a blessing? As much as we wish we could avoid unpleasantness completely, we all have “one of those days” from time to time. And I’ve had a quite few of “those days” in … Continue reading
The past few weeks I have found myself on life’s roller coaster… Lots of ups and downs! Soon after my last blog post I had a checkup with Dr. Wilson, my hematologist/oncologist. Following my most recent central line fiasco, Dr. … Continue reading