Category Archives: Journal

It’s an Unpredictable Life – A Journal Post

The past few weeks I have found myself on life’s roller coaster… Lots of ups and downs! Soon after my last blog post I had a checkup with Dr. Wilson, my hematologist/oncologist. Following my most recent central line fiasco, Dr. … Continue reading

Posted in Awareness, Journal | Tagged , , , | 15 Comments
It’s Beginning to Feel a Lot Like Bedtime.

“I will instruct you and teach you in the way you should go;     I will counsel you with my loving eye on you.”  Psalm 32:8 After a busy few days, I am delighted to be home! It was a … Continue reading

Posted in Journal | Tagged , , , , , , | 19 Comments
By George, I Think We’ve Got It!

So what’s a big kid like me to do? I continually find myself facing the dilemma that the pool of mitochondrial disease specialists is dismally minuscule, with most of those doctors only accepting pediatric patients. To be completely honest, this … Continue reading

Posted in Journal | Tagged , , , | 24 Comments