Tag Archives: Ehlers-Danlos

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We Are Not Invisible!

National Chronic Invisible Illness Awareness Week was observed earlier this month. Over the years my illness has become more obvious to a casual observer, but from the early days of my chronic battle I poignantly remember the challenges posed by the mere fact that my illness was largely invisible. And because of those painful memories, I feel compelled to speak up for myself, for my friends, and for the many silent sufferers of invisible illness.

My very first diagnosis in my journey was Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS), a chronic neurological pain condition. At age 13 I still looked like the same happy, peppy, sassy Sarah Kate in my darling little Abercrombie skirt; but on the inside, I was fighting to deal with this new sensation of an ever-present burning flame that threatened to bring me to tears if only I would give into it.

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My Spiced up Life! – A Journal Post

Have you ever thought of “thankfulness” as a blessing? As much as we wish we could avoid unpleasantness completely, we all have “one of those days” from time to time. And I’ve had a quite few of “those days” in … Continue reading

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