Tag Archives: HLH

My Spiced up Life! – A Journal Post

Have you ever thought of “thankfulness” as a blessing? As much as we wish we could avoid unpleasantness completely, we all have “one of those days” from time to time. And I’ve had a quite few of “those days” in … Continue reading

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It’s an Unpredictable Life – A Journal Post

The past few weeks I have found myself on life’s roller coaster… Lots of ups and downs! Soon after my last blog post I had a checkup with Dr. Wilson, my hematologist/oncologist. Following my most recent central line fiasco, Dr. … Continue reading

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What’s It All About?

So this whole blogging thing I’m doing here… What’s it all about? I’m so glad you asked! For starters, I delight in telling a tale or two from time to time. Additionally, my writing provides an efficient way for me … Continue reading

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It’s Beginning to Feel a Lot Like Bedtime.

“I will instruct you and teach you in the way you should go;     I will counsel you with my loving eye on you.”  Psalm 32:8 After a busy few days, I am delighted to be home! It was a … Continue reading

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By George, I Think We’ve Got It!

So what’s a big kid like me to do? I continually find myself facing the dilemma that the pool of mitochondrial disease specialists is dismally minuscule, with most of those doctors only accepting pediatric patients. To be completely honest, this … Continue reading

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God’s Silver Linings

As much as it would please me to tell you that I was a delightful 12-year-old girl, I cannot truthfully say it. Now don’t misunderstand, I was no delinquent. I simply had a bit of that oh-so-charming adolescent attitude. At … Continue reading

Posted in My Story, Reflections | Tagged , , , , , | 42 Comments