Tag Archives: pain

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Christmas Crazy & A Prayer Request

Merry Christmas and happy 2016, friends! I hope that your holiday season was just as blessed, but perhaps not quite as crazy, as mine has been. But regardless of the crazy factor, everybody knows that Christmastime is my very favorite time of the year.
I also have a prayer reques for you todayt. Yes, I know, I have made many such requests lately, but I am hoping they will slow down soon.

Posted in Fun, Gastroparesis, inpatient, Prayer Request, surgery | Tagged , , , , , , , , , , | 9 Comments
We Are Not Invisible!

National Chronic Invisible Illness Awareness Week was observed earlier this month. Over the years my illness has become more obvious to a casual observer, but from the early days of my chronic battle I poignantly remember the challenges posed by the mere fact that my illness was largely invisible. And because of those painful memories, I feel compelled to speak up for myself, for my friends, and for the many silent sufferers of invisible illness.

My very first diagnosis in my journey was Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS), a chronic neurological pain condition. At age 13 I still looked like the same happy, peppy, sassy Sarah Kate in my darling little Abercrombie skirt; but on the inside, I was fighting to deal with this new sensation of an ever-present burning flame that threatened to bring me to tears if only I would give into it.

Posted in Awareness, My Story, Reflections | Tagged , , , , , , , , , | 9 Comments
“Love”-ing Life

Hey you! Yeah, you! Did ya hear the absolutely sensational news? I had a new central line placed. But wait! It gets better! Sure, I was mighty pleased that the aforementioned line was placed successfully… But – here’s the best … Continue reading

Posted in Alice Eloise, Journal, Pain, paralysis, RSD, Uncategorized | Tagged , , , , , , , , , | 15 Comments
I Believe in Miracles!- A Journal Post

So. Are you psyched? Because guess what… I am TOTALLY psyched! Yesterday was a party over here at the Frey household. Isn’t it always a party, though? On this day in particular, however, we celebrated three exciting occasions. April 17th is one of my favorite days ever, purely because it is my big sister Krista’s birthday! She is a lovely girl after all, one of the supreme blessings in my life!

In 1991, the 17th of April was almost certain to be doubly special, as yours truly was expected to enter the scene on that very date. But it will come as no surprise to you that even then I had a mind of my own. To build suspense, I opted to be “fashionably late” and refrained from making my grand premiere until April the 25th. Additionally I am a pretty fair sharer now that I have had time to mature a bit, but honestly, it was probably best for all involved that I had my own special day when I was a tiny moppet.

Posted in Awareness, Journal, Pain, Patient Stories, RSD, Uncategorized | Tagged , , , , , , , | 13 Comments
Guess Who’s Back!- A Journal Post

Goodness gracious… Where to begin, where to begin? Well, for starters, it’s me… Yes, me, Sarah Kate! My mama did a fantastic job giving you an update when I was unavoidably detained thanks to the complications of my recent central line … Continue reading

Posted in HLH, Journal, Pain, paralysis, RSD | Tagged , , , , , , , , | 20 Comments
A Brief Update, and so Much Love for my Family and Friends!

Hi friends! Not too much is happening around here this evening. And weekends at the hospital are notoriously slow, but that’s okay, because I really need some rest! I was finally moved up to a room on the floor around … Continue reading

Posted in HLH, Pain, Prayers, please! | Tagged , , , , , , | 8 Comments
My Spiced up Life! – A Journal Post

Have you ever thought of “thankfulness” as a blessing? As much as we wish we could avoid unpleasantness completely, we all have “one of those days” from time to time. And I’ve had a quite few of “those days” in … Continue reading

Posted in Awareness, Journal | Tagged , , , , , , , , , , | 15 Comments