Category Archives: Uncategorized

Update from Krista

Update on my sister: Sarah and my family would really appreciate your continued prayers. The surgery went okay, but she is in terrible pain and the progress is so slow. The doctors have trouble understanding why her body has such … Continue reading

Posted in Uncategorized | 4 Comments
God Only Knows

Sarah Kate is a very complex girl.  We came to the realization some time ago that there is no one anywhere who can fully understand or explain all of her very complicated medical presentations.  In other words … God only … Continue reading

Posted in Uncategorized | 8 Comments
Thanks …

We are both relieved and thankful that Sarah’s GI obstruction has been successfully removed.  She is now resting … (well, more like sedated) which is a huge relief after watching her in such terrible pain today.  Seeing our typically optimistic, … Continue reading

Posted in Uncategorized | 6 Comments
Do-Re-Mi-Fa-Sol-La-Ti

Last time you heard from me, I was off to the hospital for an MRI. Since my last big HLH flare, I’ve been having very serious hypoglycemia. While I was inpatient this past December, we were surprised to discover that my cortisol was at a critically low level. I practically begged the doctors to allow me to return home to my beloved Christmas tree, but it was simply too dangerous for me to be anywhere but the hospital until this had stabilized with treatment. In the meantime I was well taken care of — I had my darling Doodle service dog Alice Eloise, and one of my favorite nurses, Erin. What I didn’t have was a hairbrush. But did it really matter? My puppy and my nurse certainly didn’t mind my wild hair! Especially in the hospital, a little bit of kindness goes a long, long way.

Posted in HLH, paralysis, Prayer Request, surgery, Uncategorized | 21 Comments
Merry Christmas and a Crazy New Year – My First Prayer Request of 2015

I have come to find that all of the leftover craziness of 2014 has somehow followed me into the new year. Such a lot of craziness, in fact, that a journal post to bring everybody up to date has been in the works since October! But the chaos has just piled up on top of itself over and over again, growing to the point that I suspect it may fill a series of blog posts. I simply have so much I need to share with you! Just not right now… Rather, today I bring you my first prayer request of 2015.

Posted in inpatient, ketamine, Pain, Prayer Request, Uncategorized | 13 Comments
“Love”-ing Life

Hey you! Yeah, you! Did ya hear the absolutely sensational news? I had a new central line placed. But wait! It gets better! Sure, I was mighty pleased that the aforementioned line was placed successfully… But – here’s the best … Continue reading

Posted in Alice Eloise, Journal, Pain, paralysis, RSD, Uncategorized | Tagged , , , , , , , , , | 15 Comments
I Believe in Miracles!- A Journal Post

So. Are you psyched? Because guess what… I am TOTALLY psyched! Yesterday was a party over here at the Frey household. Isn’t it always a party, though? On this day in particular, however, we celebrated three exciting occasions. April 17th is one of my favorite days ever, purely because it is my big sister Krista’s birthday! She is a lovely girl after all, one of the supreme blessings in my life!

In 1991, the 17th of April was almost certain to be doubly special, as yours truly was expected to enter the scene on that very date. But it will come as no surprise to you that even then I had a mind of my own. To build suspense, I opted to be “fashionably late” and refrained from making my grand premiere until April the 25th. Additionally I am a pretty fair sharer now that I have had time to mature a bit, but honestly, it was probably best for all involved that I had my own special day when I was a tiny moppet.

Posted in Awareness, Journal, Pain, Patient Stories, RSD, Uncategorized | Tagged , , , , , , , | 13 Comments