Hi friends!

I’m keeping this post short, as I’m feeling very poorly at the moment.

This week has been pretty bonkers! Tuesday I was in for a routine checkup at the GI clinic and swung by the hematology/oncology clinic to have my weekly labs drawn. Last week I switched home healthcare companies and I do not have a new nurse as of yet. So Wednesday Mom and I changed my central line dressing ourselves, only to discover a bit of greenish gunk on the site of my line. Greenish gunk is very rarely a good thing anywhere outside of a Nickelodeon television show, but it is particularly bad on a central line.

Consequently I headed back to the hem/onc clinic on Thursday for cultures and a precautionary dose of an IV antibiotic, and then I was sent home. The past couple of weeks I have sporadically been running low-grade fevers. But Thursday night I began having chills and feeling extra lousy a couple of hours after beginning my nightly TPN infusion, and I spiked a fever just over 101 soon after.

101 is the magic febrile number at which a person with a central line should go to the Emergency Room. So, that’s where we are! It’s quite possible that I have a central line infection. But my blood counts have plummeted since my labs were drawn on Tuesday, so we have to be very vigilant to be sure that this is not actually an HLH flare… Or even worse, a line infection triggering an HLH flare.

Any of these scenarios would be very serious. Please keep me in your prayers!

I am being admitted here at St. Louis Children’s Hospital. Hopefully we have caught whatever this is early and I will be out of here before long! My sweet Alice Eloise did not come along to the Emergency Room with me, but I am planning to have her right by my side tomorrow! I already miss her terribly.

At home I’ve been trying to sit Mom down to watch “Spice World” with me, but somehow she keeps evading my efforts. She has no idea what she is missing. But whenever she stays with me at the hospital it’s pretty close quarters! So I anticipate that some mother-daughter bonding time involving quality girl power entertainment is forthcoming!

Thank you for checking in… I very much appreciate your prayers!!!