I have come to find that all of the leftover craziness of 2014 has somehow followed me into the new year. Such a lot of craziness, in fact, that a journal post to bring everybody up to date has been in the works since October! But the chaos has just piled up on top of itself over and over again, growing to the point that I suspect it may fill a series of blog posts. I simply have so much I need to share with you!

Just not right now…

Rather, today I bring you my first prayer request of 2015. Ever since my HLH flare in October, I have been experiencing extreme hypoglycemia. It has been terribly challenging to manage; even with my TPN (IV nutrition) infusing 24 hours a day, my blood sugar still tends to dip. So when I was inpatient last month, the doctors ordered some testing in an effort to determine the cause of this hypoglycemia, revealing that my cortisol levels were dangerously low. Since then we received the results of more tests that had been pending, and it has become clear that my pituitary gland is not doing its job, explaining the lack of cortisol in my body.

Now look sharp, this is where you come in! Today I will be having an MRI to check out this faulty pituitary gland. And… Why exactly is this a big deal, you ask? Well, quite simply it would not be anything but a minor annoyance for most people. But due to my body’s “unique” way of dealing with pain and sensory input, this procedure requires general anesthesia for me. Thankfully I am immensely blessed to have the most sensational palliative care team in the entire world; they have pulled together the arrangements for my magic anesthesia protocol, which is an incredible relief. We all know that I have a way of being unpredictable, though, so I really need your help, too! I would be ever so appreciative if you could please remember to keep me in your prayers today. We are talking all sweet sugar plum dreams, and absolutely, positively, no paralysis!!!

Keep an eye out for a non-emergent blog post sometime soon! Let’s see if life can slow down just enough for me to share the jolly, albeit chaotic, details of my favorite time of year! Alice Eloise and I hope that all of our dear friends had a most blessed and magical Christmas, and a happy New Year, too.

And now, I am off to count some sheep! Or perhaps I should count Doodles instead?

One… Two…