A Brief Update, and so Much Love for my Family and Friends!

Hi friends!

Not too much is happening around here this evening. And weekends at the hospital are notoriously slow, but that’s okay, because I really need some rest! I was finally moved up to a room on the floor around 6:30 this morning and hadn’t had a wink of sleep before that. Right now the doctors are working on addressing my pain, so hopefully a restful night is ahead of me.

My wonderful hematologist/oncologist, Dr. Wilson, is the doc on call this weekend, which is a major relief! My blood cultures have not grown anything, which is always welcome news. We still aren’t quite sure what’s going on, though. Due to the gunk and pain at my central line site it appears that some sort of line infection is going on, but we will just be keeping a close eye on things. The way my blood counts tend to bottom out is rather odd. We don’t know what to attribute this issue to, whether it’s a part of my HLH, mito, or something else altogether. My body doesn’t consult me about these things, I’m just along for the ride. Dr. Wilson said that I will most likely have a blood transfusion to boost me back up before I get out of here.

Unfortunately Alice Eloise did not make it to the hospital today! This was a disappointment for me, but the poor girl was afraid to ride in the car with only her grandpa. The spoilt pooch will arrive here early tomorrow morning when Uncle Tim can be her chauffeur, and Aunt Krista can accompany her in the backseat! I miss her terribly.

“My grace is sufficient for you, for My power is made perfect in weakness.”
2 Corinthians 12:9


I want to give a big thank you to everyone for being so supportive! I had a few visitors today, and have heard from such a lot of my friends and family. Please know that your prayers and thoughtfulness are an incredible encouragement for me!

Mom and I did watch “Spice World” today. I use the verb “watch” loosely here, as I’m pretty certain Mama wasn’t giving the film much of her attention. I should really inform my doctors regarding the therapeutic benefits the Spice Girls can provide… In the movie a boy in a coma opens his eyes simply because a few Spices came to visit! (I believe a mad crush on Ginger Spice had something to do with his miraculous recovery, but still…) So don’t be too quick to dismiss those Girls!

Now if you would please excuse me, it’s well past my bedtime! XoXo

Sarah Kathryn Frey

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8 Responses to A Brief Update, and so Much Love for my Family and Friends!

  1. Amy Blood says:

    You are so cute! Good luck on your blood transfusion. <3

  2. Judy Reese says:

    Sleep tight :) i hope your Mom gets some rest tonight too. I am sure Uncle Tim and Aunt Krista can get Alice to see you tomorrow. In the meantime, enjoy your new friend. She ie sure cute! Prayers are still coming your way for a speedy return home and hope you get to feeling better soon!! I know you are in good hands if Dr. Wilson is the doc on for the weekend!! Relief!!! Thanks so much for the update. Love, the Reese’s

  3. Yvonne says:

    Hang in there Sweet Sarah. Praying for no fever and rising blood counts today. Seeing your doodle will surely be the best medicine :) Hugs to you and your family!

  4. Joanne Orfanos says:

    Thinking of you Sarah and hoping for a quick recovery.

  5. Judy McKillip says:

    Sleep well Sarah- I hope Alice will be with you soon, i am sure she misses you. As always you are in my thoughts and prayers today. Judy

  6. So glad the blood cultures are okay. I pray your doctors will have the wisdom to understand what is happening and what is needed. Say hi to Alice Eloise when she gets there!

  7. Sue Deist says:

    Quick recovery and rest to you—give Alice a big hug when she arrives :)

  8. We had a thunderstorm last night in Orlando and lost power. I didn’t sleep much with the electric company chainsawing through some downed trees most of the night. I know it must have been hard to get much sleep for you in the hospital, in an unfamiliar place far from home. Praying for your comfort and strength, Sarah Kate, and that you would sense the Lord’s presence with you (Zephaniah 3:17)…