A Brief Update, and so Much Love for my Family and Friends!

Hi friends!

Not too much is happening around here this evening. And weekends at the hospital are notoriously slow, but that’s okay, because I really need some rest! I was finally moved up to a room on the floor around 6:30 this morning and hadn’t had a wink of sleep before that. Right now the doctors are working on addressing my pain, so hopefully a restful night is ahead of me.

My wonderful hematologist/oncologist, Dr. Wilson, is the doc on call this weekend, which is a major relief! My blood cultures have not grown anything, which is always welcome news. We still aren’t quite sure what’s going on, though. Due to the gunk and pain at my central line site it appears that some sort of line infection is going on, but we will just be keeping a close eye on things. The way my blood counts tend to bottom out is rather odd. We don’t know what to attribute this issue to, whether it’s a part of my HLH, mito, or something else altogether. My body doesn’t consult me about these things, I’m just along for the ride. Dr. Wilson said that I will most likely have a blood transfusion to boost me back up before I get out of here.

Unfortunately Alice Eloise did not make it to the hospital today! This was a disappointment for me, but the poor girl was afraid to ride in the car with only her grandpa. The spoilt pooch will arrive here early tomorrow morning when Uncle Tim can be her chauffeur, and Aunt Krista can accompany her in the backseat! I miss her terribly.

“My grace is sufficient for you, for My power is made perfect in weakness.”
2 Corinthians 12:9


I want to give a big thank you to everyone for being so supportive! I had a few visitors today, and have heard from such a lot of my friends and family. Please know that your prayers and thoughtfulness are an incredible encouragement for me!

Mom and I did watch “Spice World” today. I use the verb “watch” loosely here, as I’m pretty certain Mama wasn’t giving the film much of her attention. I should really inform my doctors regarding the therapeutic benefits the Spice Girls can provide… In the movie a boy in a coma opens his eyes simply because a few Spices came to visit! (I believe a mad crush on Ginger Spice had something to do with his miraculous recovery, but still…) So don’t be too quick to dismiss those Girls!

Now if you would please excuse me, it’s well past my bedtime! XoXo

Sarah Kathryn Frey

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