Category Archives: Prayer Request

Do-Re-Mi-Fa-Sol-La-Ti

Last time you heard from me, I was off to the hospital for an MRI. Since my last big HLH flare, I’ve been having very serious hypoglycemia. While I was inpatient this past December, we were surprised to discover that my cortisol was at a critically low level. I practically begged the doctors to allow me to return home to my beloved Christmas tree, but it was simply too dangerous for me to be anywhere but the hospital until this had stabilized with treatment. In the meantime I was well taken care of — I had my darling Doodle service dog Alice Eloise, and one of my favorite nurses, Erin. What I didn’t have was a hairbrush. But did it really matter? My puppy and my nurse certainly didn’t mind my wild hair! Especially in the hospital, a little bit of kindness goes a long, long way.

Posted in HLH, paralysis, Prayer Request, surgery, Uncategorized | 21 Comments
Merry Christmas and a Crazy New Year – My First Prayer Request of 2015

I have come to find that all of the leftover craziness of 2014 has somehow followed me into the new year. Such a lot of craziness, in fact, that a journal post to bring everybody up to date has been in the works since October! But the chaos has just piled up on top of itself over and over again, growing to the point that I suspect it may fill a series of blog posts. I simply have so much I need to share with you! Just not right now… Rather, today I bring you my first prayer request of 2015.

Posted in inpatient, ketamine, Pain, Prayer Request, Uncategorized | 13 Comments
Shoutout from the Whirlwind — A Prayer Request

Hi friends! It’s just me, reporting from the twister that swept me away a couple of months ago. Newsflash: That aforementioned twister has not yet been so kind as to set me back down on solid ground, no matter how politely I tap my ruby slippers! But I must take a moment to shout out from my whirlwind with a prayer request. It appears as though I’ve found myself in a bit of an emergency once again. Surprise, surprise.

Posted in emergency, Prayer Request, surgery | Tagged , , , , | 14 Comments
It’s October 3rd.

I was 13 years old when “Mean Girls” was released in movie theaters. Since then, every year when October 3rd rolls around I find myself wishing I was in calculus class, with a hunky guy named Aaron sitting in the desk in front of me. In my daydream, Aaron would turn around to face me, asking, “What day is it?” to which I would eagerly reply, “It’s October 3rd”.

This year, however, I have something much, much better to do on October 3rd.

Last Thursday I received an exciting surprise. I had been waiting to hear from a doctor’s office in Rhode Island to schedule a consultation. Well, Thursday they called to say that Dr. Chopra could see me either October 3rd or December 10th. So of course I snatched up the October 3rd slot!

Posted in CRPS, Journal, Prayer Request, RSD | 14 Comments