Tag Archives: mito

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We Are Not Invisible!

National Chronic Invisible Illness Awareness Week was observed earlier this month. Over the years my illness has become more obvious to a casual observer, but from the early days of my chronic battle I poignantly remember the challenges posed by the mere fact that my illness was largely invisible. And because of those painful memories, I feel compelled to speak up for myself, for my friends, and for the many silent sufferers of invisible illness.

My very first diagnosis in my journey was Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS), a chronic neurological pain condition. At age 13 I still looked like the same happy, peppy, sassy Sarah Kate in my darling little Abercrombie skirt; but on the inside, I was fighting to deal with this new sensation of an ever-present burning flame that threatened to bring me to tears if only I would give into it.

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Guess Who’s Back!- A Journal Post

Goodness gracious… Where to begin, where to begin? Well, for starters, it’s me… Yes, me, Sarah Kate! My mama did a fantastic job giving you an update when I was unavoidably detained thanks to the complications of my recent central line … Continue reading

Posted in HLH, Journal, Pain, paralysis, RSD | Tagged , , , , , , , , | 20 Comments
My Spiced up Life! – A Journal Post

Have you ever thought of “thankfulness” as a blessing? As much as we wish we could avoid unpleasantness completely, we all have “one of those days” from time to time. And I’ve had a quite few of “those days” in … Continue reading

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What’s It All About?

So this whole blogging thing I’m doing here… What’s it all about? I’m so glad you asked! For starters, I delight in telling a tale or two from time to time. Additionally, my writing provides an efficient way for me … Continue reading

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It’s Beginning to Feel a Lot Like Bedtime.

“I will instruct you and teach you in the way you should go;     I will counsel you with my loving eye on you.”  Psalm 32:8 After a busy few days, I am delighted to be home! It was a … Continue reading

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By George, I Think We’ve Got It!

So what’s a big kid like me to do? I continually find myself facing the dilemma that the pool of mitochondrial disease specialists is dismally minuscule, with most of those doctors only accepting pediatric patients. To be completely honest, this … Continue reading

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God’s Silver Linings

As much as it would please me to tell you that I was a delightful 12-year-old girl, I cannot truthfully say it. Now don’t misunderstand, I was no delinquent. I simply had a bit of that oh-so-charming adolescent attitude. At … Continue reading

Posted in My Story, Reflections | Tagged , , , , , | 41 Comments