Tag Archives: travel

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I’m a Dear of a Reindeer… Why Don’t I Fit In? – A Prayer Request

So where are we now? Well, to be specific, we are in Springfield, Illinois. And why are we in Springfield, you might ask? Why, we are on our next wild and crazy adventure, of course. Woohoo. Or, perhaps more accurately, boohoo.

But no, really it’s a blessing that I am here… But a rather roundabout blessing at that.

Let’s rewind a bit. Since February, my central line has gradually migrated out of place as the tissue around it deteriorated. So now I am looking at the same problem that has led to the demise of my last few lines: The cuff that keeps the catheter in and infection out has once again slipped outside of the exit site.

Posted in inpatient, Prayer Request, surgery | Tagged , , , , | 8 Comments
I Believe in Miracles!- A Journal Post

So. Are you psyched? Because guess what… I am TOTALLY psyched! Yesterday was a party over here at the Frey household. Isn’t it always a party, though? On this day in particular, however, we celebrated three exciting occasions. April 17th is one of my favorite days ever, purely because it is my big sister Krista’s birthday! She is a lovely girl after all, one of the supreme blessings in my life!

In 1991, the 17th of April was almost certain to be doubly special, as yours truly was expected to enter the scene on that very date. But it will come as no surprise to you that even then I had a mind of my own. To build suspense, I opted to be “fashionably late” and refrained from making my grand premiere until April the 25th. Additionally I am a pretty fair sharer now that I have had time to mature a bit, but honestly, it was probably best for all involved that I had my own special day when I was a tiny moppet.

Posted in Awareness, Journal, Pain, Patient Stories, RSD, Uncategorized | Tagged , , , , , , , | 13 Comments
Guess Who’s Back!- A Journal Post

Goodness gracious… Where to begin, where to begin? Well, for starters, it’s me… Yes, me, Sarah Kate! My mama did a fantastic job giving you an update when I was unavoidably detained thanks to the complications of my recent central line … Continue reading

Posted in HLH, Journal, Pain, paralysis, RSD | Tagged , , , , , , , , | 20 Comments
It’s Beginning to Feel a Lot Like Bedtime.

“I will instruct you and teach you in the way you should go;     I will counsel you with my loving eye on you.”  Psalm 32:8 After a busy few days, I am delighted to be home! It was a … Continue reading

Posted in Journal | Tagged , , , , , , | 19 Comments
By George, I Think We’ve Got It!

So what’s a big kid like me to do? I continually find myself facing the dilemma that the pool of mitochondrial disease specialists is dismally minuscule, with most of those doctors only accepting pediatric patients. To be completely honest, this … Continue reading

Posted in Journal | Tagged , , , | 24 Comments